{"id":17689,"date":"2015-11-23T05:30:56","date_gmt":"2015-11-23T10:30:56","guid":{"rendered":"https:\/\/www.wework.com\/creator\/?p=17689"},"modified":"2020-03-30T19:27:21","modified_gmt":"2020-03-30T23:27:21","slug":"from-making-award-winning-films-to-starting-a-non-profit-jason-dasilva-shares-his-uphill-journey","status":"publish","type":"post","link":"https:\/\/www.wework.com\/ideas\/community-stories\/member-spotlight\/from-making-award-winning-films-to-starting-a-non-profit-jason-dasilva-shares-his-uphill-journey","title":{"rendered":"From award-winning filmmaker to non-profit founder"},"content":{"rendered":"

While on vacation in the Caribbean, Jason DaSilva was standing with his family as they watched planes fly low over Maho Beach on St. Maarten. Without warning, he collapsed on the narrow strip of sand.<\/p>\n

He couldn\u2019t make it to his feet, no matter how many times his brother tried to pick him up. This was nine years ago, not long after he had been diagnosed with multiple sclerosis, a degenerative disease that eats away at the brain and spinal cord. For the first time he was rattled by the reality that his condition was never going to improve.<\/p>\n

\u201cThat\u2019s when I started on the journey of making my film,\u201d says DaSilva, who directed the award-winning documentary called When I Walk<\/a><\/em>, which debuted at the Sundance Film Festival in 2013.<\/p>\n

In the film, DaSilva\u2019s eyes are ablaze as he sits in front of the camera and nudges the record button. It shows him living in a tiny one-bedroom apartment in East Village with his fianc\u00e9e Alice Cook\u2014they marry in one scene\u2014facing the daily challenges of finding wheelchair accessible places in Manhattan.<\/p>\n

Watching the film can be heart wrenching, especially if a loved one has experienced this disease. But DaSilva says his goal was always to produce a practical resource for people with disabilities.<\/p>\n

\u201cFilm can tell a great story, but it\u2019s for people to watch in theaters or on TV,\u201d DaSilva says. \u201cI wanted to put something out there that can be used in the public space for generations to come.”<\/p>\n

\"From<\/a><\/p>\n

His idea? An app to help people find places that are accessible to people with disabilities\u2014sort of a Yelp for those who can\u2019t navigate steps or maneuver around tight corners.<\/p>\n

The concept came to him while he was hanging out with his friends in New York City\u2019s East Village. The group kept hopping from restaurant to restaurant to find one that could accommodate his motorized wheelchair.<\/p>\n

That was the catalyst for AXS Lab<\/a>, a nonprofit he co-founded last year with a team of three people, including his wife. Their app, which also launched last year, contains reviews and ratings from about 8,000 registered users on accessible places ranging from cafes and restaurants to libraries and post offices.<\/p>\n

By next year, the team hopes the app will have more than 1 million reviewers. To accomplish this they\u2019ve turned it into a game, with users competing in a \u201cMapathon\u201d to rank the most places in their neighborhoods. Through an ongoing Kickstarter campaign<\/a> the team is aiming to raise $60,000 to help promote this feature.<\/p>\n

On some days, DaSilva joins his wife at their desk in Chelsea\u2019s WeWork Labs<\/a>, where he answers calls and responds to emails.<\/p>\n

\u201cI\u2019m his biggest supporter,\u201d says Cook. She says they are both motivated by the hope that their two-year-old son Jase will one day live in a \u201c100 percent accessible world.\u201d<\/p>\n

Although DaSilva says he can\u2019t use his hands to film or edit any longer, he\u2019s still planning to make another documentary\u2014this time about traveling around the world guided by AXS Map and sharing about the progress he\u2019s made with his app. This month, he even had the opportunity to share his AXS Map on a disability panel at the White House.<\/p>\n

\u201cThe one challenge I have is, my MS doesn\u2019t get any better,\u201d DaSilva says. \u201cIt continues to get worse, and I have to adjust to new challenges daily. Other than that, I continue on.\u201d<\/p>\n

Photo credit: Emanuel Hahn<\/p>\n","protected":false},"excerpt":{"rendered":"

While on vacation in the Caribbean, Jason DaSilva was standing with his family as they watched planes fly low over Maho Beach on St. Maarten. Without warning, he collapsed on the narrow strip of sand. He couldn\u2019t make it to his feet, no matter how many times his brother tried to pick him up. This […]<\/p>\n","protected":false},"author":917,"featured_media":34617,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":""},"categories":[43903,43911],"tags":[],"class_list":["post-17689","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-community-stories","category-member-spotlight"],"acf":[],"yoast_head":"\nFrom award-winning filmmaker to non-profit founder<\/title>\n<meta name=\"description\" content=\"After being diagnosed with multiple sclerosis, that's when Jason DaSilva started on his journey to making the award-winning documentary called When I Walk, which debuted at the Sundance Film Festival in 2013.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" 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